00:00:00THOMPSON: Hello, my name is Mack Thompson, and today I'm interviewing Jace
Peters-White for the Disabled in Kentucky Oral History project remotely over
Zoom. The date is June 28, 2022. Jace, I'm happy you're here.
PETERS-WHITE: I'm very happy to be here, Mack. Thank you so much for including
me on this.
THOMPSON: All right, thank you for joining in on this project and being willing
to be interviewed for this. I'm excited to hear from you. I guess to start
things off, would you feel comfortable sharing a little bit about yourself?
PETERS-WHITE: Yeah, absolutely. So my name's Jace. I use any pronouns, but
usually prefer they/them. I am originally from Scranton, Pennsylvania, but now I
live in Lexington, Kentucky. I studied theater at UK and now I'm sort of in
between jobs, but, you know, freelance artist and, you know--and looking, you
know, into doing more advocacy work and--especially within, you know, the LGBTQ
community, and especially
00:01:00
intersections of, you know, the disabled and, you know, Black community as well,
you know, just finding ways to support that in any way. So yeah, that's sort of
what I am currently doing.
THOMPSON: Thank you for sharing. I would love to hear more about your art and
advocacy work, if you feel comfortable sharing.
PETERS-WHITE: Yeah. Yeah, definitely. So yeah, so, you know, my art has been
something that I sort of, like, had a part of my life as long as I can remember,
you know, in capacities. The thing that I, you know, enjoy the most is writing.
I love writing all sorts of, you know, like, fiction, nonfiction, like,
journalism, playwriting, and then also theater is the other one that I really
enjoy. And, you know, within that, I like stuff that, you know, is very
personable and, you know, fueled by, you know, my experiences but also, you
know, just generally
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has really, you know, strong intentions and purposes behind it. So, you know, I
like to do theater that centers around non--especially, you know, cishet voices.
So I've done a lot of projects within that. And then as far as my advocacy work,
you know, I've done little bit of--not a little bit of everything, necessarily.
(laughs) But, you know, I started off, you know, establishing a Gay-Straight
Alliance at my high school many years ago and, you know, since that point, I've
just really been passionate about, you know, just creating more, you know, safe
spaces and open spaces for queer youth especially to just exist as themselves.
So for about a year while I was in undergrad, I was in a programming internship
for the Office of LGBTQ Resources at UK, and there I did educational programming
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and events related to gender identity, pronoun button making, things like that.
And I'm sort of, you know, taking another big step right now in a queer group
that I've started called Queering Spirituality that I've started with the
Spiritual Center that I attend here in Lexington, and that is, you know--the
goal with that is, you know, like, similar to any kind of like, you know, safe
space, you know, just having an open and affirming space for queer teens and
young adults to, you know, just sort of explore this intersection of identity
and spirituality, to, you know, network and connect with other queer people
that--so they can, you know, feel included but, you know, have conversations
that they feel like they might not be able to. Yeah, yeah.
THOMPSON: Thank you for sharing. Would you feel comfortable talking a bit more
about your relationship to disability?
PETERS-WHITE: Yeah.
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Yeah, absolutely. So yeah, it's interesting because, you know, for a long time,
I, you know, didn't consider myself disabled, and I still sometimes struggle
with that, I think, because of my own, you know, struggle with internalized
ableism. But in the last two years since COVID came, I, you know, had some
discoveries about, you know, especially, you know, my mental health and, you
know, some neurodivergences I had. You know, so I've, you know, discovered, you
know, that I am autistic, and, you know, I'm currently self-diagnosed. I'm
pursuing an assessment, but also am completely and fully, like, accepting and
believe in, like, self diagnoses being valid because, you know, AFAB experiences
are completely different, and we can get--(laughs)--into more of that in a bit.
But anyway, yeah, so, you know, I think
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because of--because I've spent a lot of my life, you know, believing that I
wasn't disabled and that, you know, it was--I think a lot of my views on
disability were sort of, like, these, like, extreme ideas that sort of society
gave me of, you know, like, "Oh, it's people that, you know, like, you know,
like wheelchair users--excuse me--or, you know, people who are hard of hearing,
or, you know, like, very specific, you know, you know, classes of, you know,
physical disabilities or, you know, learning disabilities that--" You know, I
was like, "Well, I--that's not me, so I'm not a part of that." But, you know,
it's, you know, similar to, you know, a lot of things, including other
identities. There's a lot of spectrum and broadness to it. And so now I feel
more comfortable, you know, like, you know, calling myself disabled, you know,
having some, like, a minor physical--excuse me--
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minor physical disability, and some other disabilities. It feels more
comfortable to say that because it's--because I understand a little bit better now.
THOMPSON: Thank you for sharing that. I guess do you feel like being in the
pandemic helped, like, facilitate, like, have time to, like, discover your
autistic identity? Or is that kind of, like, separate, like?
PETERS-WHITE: Yeah, no, that's a great question. It is very much been a time for
me to figure that out. I think it's, you know--it's been a time for a lot of
people to discover a lot of different elements in themselves they just didn't
really explore because, you know, we were all suddenly forced to, you know,
isolate and be on our own, so we were sort of exploring parts of ourselves that,
you know, had never even crossed our minds. And a friend of mine had
actually--had just
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started--this is, you know, mid to late 2020--had just started talking to their
therapist about possibly being autistic, and I was just sort of silently
thinking, like, "Huh, that--I can sort of relate to that, but I don't know if
that's me." And I actually--I have a memory a couple months after that, talking
to my roommate, how--and I said something to her along the lines of, like, "Oh
yeah, as the only neurotypical one of the group," and she sort of chuckled at me
and she was like, "The most neurotypical one of the group," and, you know,
several months later, even that wasn't--(laughs)--necessarily true, after all
these discoveries that I had about myself. And yeah, so anyway, yeah, COVID has
definitely, you know, given opportunity to explore, you know, these communities
and, you know, research and learn more about myself in a much broader
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capacity.
THOMPSON: I feel like a lot of people are saying that, and that's definitely
been my experience too, so thank you for sharing. (laughs) Hashtag-relatable.
How else--if you feel comfortable sharing, are there other ways that you've been
impacted about--by the pandemic that you feel comfortable sharing today?
PETERS-WHITE: Yeah, sure. I mean, you know, big--you know, I think emotional
impact has been, you know, the largest component of that, just, you know, being
in periods of isolation and, you know, like, having sort of this--I can't
remember the exact term for it, but, you know, like, global trauma that
everybody is experiencing of going through this and, you know, that it is
continually going on, that it, you know--despite things, you know, improving in
some ways, it's
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staying the same and still getting worse in a lot of other ways at this point.
And I had another point, and it totally drifted from my brain. Yeah, and, you
know, like, in terms of, like, you know, like, physical wellbeing, it was also,
you know--it was stressful for me, you know, as somebody who has, you know,
worked in the food industry a lot and, you know, like, in an industry that is
all about, you know, like, you know, consumption and, you know, working with the
public. You know, I have a lot of friends that work in it, and I--you know, I
wasn't working in the food industry at the time, but I started again in 2021,
and it was very horrifying to, you know, be working with the public in that
intimate of a setting and, you know, worry about my health and, you know, worry
about being at risk, and--yeah, and, you know, that sort of, like, leading up to
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back in December, myself and my two roommates and another friend of mine all got
COVID back in January, and it's definitely, you know, impacted me, you know,
like, emotionally, but also physically. You know, I've definitely got a little
bit long COVID symptoms, like the brain fog still lingers every once and a
while. Yeah. Yeah, I guess those are--I sort of jumped all over the place, but
those are kind of some of the things that have directly impacted me with COVID.
THOMPSON: Thank you for sharing. So you had COVID December or January or both?
PETERS-WHITE: January. So it was--(laughs)--I actually got my test results,
like, on New Years Day.
THOMPSON: Oh, wow.
PETERS-WHITE: Yeah.
THOMPSON: That's--yeah, I'm sorry. That's not great. So you worked--
00:11:00
sorry, I'm--I'll go back to that point.
PETERS-WHITE: You're totally fine.
THOMPSON: --ask later on, so we'll go back later. So you said that you're, like,
late to--you didn't realize you were autistic until, like, college. So, like,
how do you think this, like, impacted you? And, like, be late-detected autistic?
PETERS-WHITE: It was very much--I almost described--similar to, like, a five
stages of grief kind of thing--(laughs)--in that, you know, I, you know,
initially, like, was sort of in this denial stage of, like, "Oh, no, that's not
really me. I just have, like--you know, like, everybody has, like, a couple of
things that they can relate to, and this and that," and then, you know, the more
I researched, the more I learned about--I was like, "Well, maybe this is me,"
and then there was sort of a brief, you know, moment of, like, euphoria in
realizing, like, "Oh, this explains so much." And then there was this sort of,
like, anger
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that came from me that in time of, you know, like, "Oh gosh, this explains so
much," and, you know, sort of, like, frustration of, you know, not being
detected until I was, you know, out of college and, you know, like, a
fully-grown adult, and it--and, you know, with that came a lot of, you know,
imposter syndrome, you know, still occasionally get that with just sort of
invalidating, you know, my own experiences, thinking that I'm making it up, all
these things. So it definitely--you know, having that later-in-life discovery
definitely impacted me a lot.
THOMPSON: Thank you for sharing. So do you feel like your disability interacts
with, like, any of your other social identities?
PETERS-WHITE: That's a good question. I think so, for sure. I mean, especially,
you know, like, I mentioned that story about me and my roommate.
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I came to realize very quickly that, you know, especially with neurodivergences,
you know, you know, those--and with queerness, you know, that's slightly
different--we all tend to sort of, like, be magnetic towards other even
subconsciously, and with that, you know, most of the friends that I have
surrounded myself with, you know, have also been neurodivergent or disabled in
some capacity. And I--and, you know, with the--and I think--I mentioned briefly,
you know, a minor physical disability. I--and, you know, I struggle with it
because it does, you know--it makes me slightly--a little bit less mobile, but I
don't know if it's technically classified as one, but I have trouble walking
sometimes with a condition I have with my feet. And anyway, that's definitely
impacted, you know, my social interactions and my social
00:14:00
identity because, you know, that has a direct impact on, you know, like, doing
activities, you know, walking around, doing things that are, you know,
physically active. And yeah, so I definitely think, you know, it's had a pretty
big impact, you know, on my social identity.
THOMPSON: Thank you for sharing that. So you mentioned earlier--and you said
that you'll talk more on this later, maybe--but, like, you mentioned
self-diagnosis and how, like, it presents differently in AFAB people, for
example. And I was wondering if you could talk more about, like,
intersectionality when it comes to, like, self-diagnoses and just that whole,
like, field of things.
PETERS-WHITE: Oh yeah, absolutely. Yeah, you know, that was, you know, sort of
finding this whole world of neurodivergency in general, but especially the vast
sort of spectrum of
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experiences, especially with autism, and, you know, differences between, you
know, AMAB and AFAB experiences. It was really almost shocking to see, like,
the--you know, the sort of, like, wide, you know, like, experiences, and, you
know, sort of, like, these, like, different, like, extremes, and, you know, not
that it's sort of, like, an imposing sides thing, but, like, it is--you know,
it's very similar to, like, you know, gender identity, you know, like, if--like,
I'll say to people, like, you know, "If you've met one trans person, you've met
one trans person, and if you've met one autistic person, you've met one autistic
person," and, you know, everybody's needs and experiences are so different, and,
you know, when it comes to intersectionality, you know, the way that those other
parts of our identity, like, cross over with, you know, neurodivergency, you
know, is--like I said, especially autism, you know, it's--
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there's so many other, like, layers about, you know, our identity, and
especially with how many autistic people also identify as LGBTQ in some way. I
mean, there's so much overlap, and I think that's--it's definitely something
that--I'm very glad to see it starting to, you know, be more, I think, inclusive
in conversations, you know, about, you know, making more inclusive spaces, more
accessible spaces, but it's something that I think needs to be a priority with a
lot of conversations about, you know, inclusivity overall.
THOMPSON: Thank you for sharing. You mentioned that a lot of autistic people are
LGBTQ. Do you have any, like, theory as to why that might be? Or is that just,
like, a thing? (laughs)
PETERS-WHITE: Yeah. (laughs) I've seen a lot of theories about, you know, gender
especially. You know, that a lot of, you know, autistic
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people are, you know, trans or nonbinary or just generally don't have, you know,
a similar sense of gender as, you know, neurotypicals may have. And I--the thing
that I read the most is, you know, that, you know, that it has a lot to do with,
you know, social constructs and, you know, difficulties with, you know,
understanding, like, sort of social rules. And, you know, that can get a little
blurry sometimes too because I don't think it's necessarily that, you know,
autistic people don't understand social rules. It's just, you know, this
misunderstanding of when they're not followed all the time or when, you know,
thinking in very sort of, like, step-by-step, like, pragmatic kind of thinking,
and any time that that's sort of challenged, it can be difficult, you know, on
either side. That's
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a very general weird way of putting it, but I just totally lost my train of
thought. Sorry. Oh my God, I completely blanked out. (laughs) I'm so sorry.
Could you repeat the question one more time?
THOMPSON: Can I? (laughs) Let's see if I remember what the question--
PETERS-WHITE: It’s okay, it's okay.
THOMPSON: I guess just what--like, oh, because we were talking some about, like,
queerness and autism, and I asked if you had any, like, theories as to why so
many autistic people are LGBTQ?
PETERS-WHITE: Yes, yes. Now I--now I'm recalling. Thank you. (laughter) I
appreciate the--getting back on track. Yeah, so, you know, I think, you know, a
lot of it, you know, just has to do with, you know, with autistic people having
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just a more complex understanding of, you know, like, social constructs. I don't
think it's a--I definitely don't think it's a limited understanding of social
constructs, which is, I think, sort of a misconception or stereotype, and from
that, I think we can sort of, like--it's where we're able to sort of build this
more, like, lush and beautiful understanding of gender and, you know, sexuality,
romantic identity, you know, all sorts of--I--parts of our identity. I think
that's sort of what--not necessarily leads us, being both autistic and LGBTQ,
but, you know, sort of, like, a correlation, not causation, kind of thing, I guess.
THOMPSON: That totally makes sense. Thank you for sharing that.
PETERS-WHITE: Yeah.
THOMPSON: So kind of transitioning subjects a little bit, like, you mentioned
having been a student, and I was just wondering, like, how was, like, school?
Both your younger years and
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at UK, how was that for you as someone who had disabilities but maybe wasn't
even aware of it at the time?
PETERS-WHITE: Yeah. So, you know, especially growing up, I--you know, in early
elementary school, I, you know, did pretty well, you know, academically. I, you
know, was, you know, getting straight A's and, you know, like, just performing
overall really well. I was, like, considered for my school's gifted program, and
I think my parents ended up deciding that they didn't want to go through with it
for me, and, you know, socially, I had friends, but I remember, you know, like,
just sort of, like, jumping around and sort of struggling sometimes with
friends. I--and then middle school, sort of where things got a little more
challengingly for me academically. I think that's sort of when, you know,
especially, you know, with social expectations
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and, you know, just general academic expectations, it made it harder for me to,
you know, stay focused and to, you know, find routines that, you know, actually
worked for me because most of them were--because material was getting more
difficult. You know, the expectations were getting higher and, you know, I
didn't have tools that I needed to succeed as much. And then high school, you
know, just continued to get even harder, and, you know, same for college. I
remember--actually before I moved down here, I spent a semester and a half in
culinary school, thinking that I wanted to really go into food service, and it
was an unbelievably overstimulating and overwhelming environment, to the point
where I ended up having to admit myself into an inpatient program for about a
week. And I just remember, you know, in all those moments where, you know,
things got very difficult,
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you know, especially in high school and college, I--you know, not having these
diagnoses and not having this understanding about myself, I had a lot of moments
where I was just, like--I just don't know what's wrong with me, and, like, you
know, I don't know what I'm doing wrong. I thought that I was--you know, I feel
like I'm taking care of myself, but I still am not getting better. And it was a
lot of moments like that, you know, especially in--like, later in my life, I've
had so far.
THOMPSON: Thank you for sharing that. That sounds really rough, and I'm sorry
that you went through that. So you mentioned that, like, the food industry was
very overstimulating for you. Were there other ways that it was inaccessible as
well? Or was that the main thing for you?
PETERS-WHITE: That was the biggest thing for me. Interesting enough, you know,
it was definitely, you know, inaccessible in general. I actually had a
girl--she's one of my
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closest friends from the program, and she's deaf, and she is the first person to
have successfully graduated from that program as a deaf person. And they--she
was initially told when she applied that she likely wouldn't be able to succeed
in the program, and she basically said, "Well, screw that. I'm going to get
through because I should be able to do, you know, anything else that any other,
you know, hearing person can be able to do." So she did, and, you know, it--but
beyond that, you know, it was especially, you know, inaccessible for, you
know--in terms of my needs, you know, like, it was overstimulating. It also, you
know, was very physically demanding, which, you know, at that point, that was
sort of when my minor physical disability sort of started sort of showing up. I
danced for
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sixteen or seventeen years, and I think from that and from starting to work in
the food industry, I developed plantar fasciitis, and it, you know--like I said,
it just makes it really difficult to stand for long periods of time or do any,
like, high-impact exercise. And, you know, that was sort of, like, a
nonnegotiable thing and a--not something that they really frankly cared about at
that point. So yeah, beyond, you know, being overstimulating, it was also very
physically demanding and exhausting.
THOMPSON: Thank you for sharing, and I'm sorry that you had that experience. How
do you think that, like, the food industry could, like, improve with
accessibility or, like, with being more available for everyone to get involved?
PETERS-WHITE: Yeah, absolutely.
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I think one of the--it's something small, but it's still like, you know--having
the accessibility or--like, the option to just sit down and, like, you know,
take more, like, frequent breaks rather than sort of--you know, with the food
industry, you know, I see so many people who are working, you know, like, eight,
ten, twelve-hour shifts, sometimes even longer, and they're just on their feet
their entire time and are just given, like, sort of, like, one long, like, you
know, thirty-minute or one-hour break, like, right in the middle of their shift,
and it just--you know, it's--that alone is not accessible. You know, having sort
of ways to, you know, implement small things like that, you know, like, having,
like, sort of, like, short breaks all throughout a shift rather than one long
break, I think, could have a big impact, and that sort of goes into more about,
you know, like--I think, you know, leaders in food--the food industry just need
to have more conversations with disabled
00:26:00
people to find ways for it to be more accessible. They need to have
conversations with, you know, potential employees who, you know, who are
disabled and want to work there, but cannot, like, you know, physically or
mentally work there because of the circumstances. You know, it--I think it just
needs to be--it needs to shift towards--we just need to have more open
conversations about it because, you know, there's so many little things that we
could change, but, you know, especially, you know, sort of this hustle culture,
this culture of, you know, like, working until you're about to fall over, like,
it's something that I really think needs to just stop. And we're starting to see
that a lot, I think, you know, that, like, this sort of idea that, you know,
like, resting is more of a priority now than, you know, working yourself to
death. But yeah. Yeah.
THOMPSON: Thank you for sharing that. So
00:27:00
how's accessibility in, like, broader (??) and Lexington?
PETERS-WHITE: Yeah, yeah. I want to say I'm a little less familiar with
Lexington's just because, you know, I--because I'm, you know, fairly, you
know--I've only lived in Lexington for about five years, and, you know,
I'm--I've sort of just started to, like, you know, sort of identify as somebody
who's disabled, and I think, you know, Lexington is better than some cities, but
there're still, like, so many opportunities for, you know--to be more
accessible, and, I mean, you know, I'm--there's a lot of stuff, you know, that
I'm still sort of unfamiliar with, you know, within the disabled community that,
you know, I, you know, we need to, you know, have discussions about and make
more accessible.
00:28:00
But, you know, it's--I definitely think, you know, there's growth necessary and,
you know, that there needs to--you know, similar to, you know, the food
industry, I think more conversations need to be had. It just needs to be sort
of, like, something that is added to, like, an agenda of, you know, any kind of,
like, growth plan for, you know, whether it's, you know, a coffee shop or, you
know, it's--the entirety of Lexington, you know, how can we, you know, make this
space more accessible? What can we do to accommodate, you know, the, you know,
disabled communities for this specific event? How can we make, you know, this
area of town more accessible to people? And I think it's, you know--like I said,
better than maybe, like, an average city, but definitely, like, is nowhere near
where it needs to be.
THOMPSON: Thank you for sharing that. I guess kind of sidelining off of that,
like, I know
00:29:00
you've done a lot, like--and you might be more familiar with it--this subject of
it of, like--within, like, the queer and LGBT spaces and, like, if you feel like
that has been accessible to you as someone with autism and other disabilities?
Like, for example, a lot of people talk about Pride. Honestly, all queer
activist spaces need--definitely have, like, the topic of accessibility and how
that needs (??) to be--I would love to hear, like, if that has been accessible?
If it needs improving? Anything along those lines.
PETERS-WHITE: Absolutely. Yeah, I think that's--you know, that's where my sort
of, like, priorities--that's the word--priorities are with, you know, like,
really making spaces more accessible because, you know, I don't think it's, you
know, a negative thing. But, you know, a lot of queer spaces, you know, have
started off as, you know, underground spaces, you know, like spaces
for--especially, you know, cis gay men to, you know, to
00:30:00
be together, you know, to party, to drink, and, you know, like, to have a good
time, which is why, you know, bars and clubs have, you know, become sort of,
like, the, like, keystone queer space. And it's just, you know--I don't think
that, you know, that's definitely not the only option here is Lexington, but
that's, you know, definitely--I think that that's something that--that's what a
lot of, you know, like, queer culture, and I think sort of, like, queer
socialization has been centered around for a long time, and I think we're
finally getting to a point where we're shifting from that, and at least starting
to have conversations about it. And, you know, it actually--you know, it's
another thing that I think sort of was a positive moment within the pandemic was
that, you know, because, you know, we weren't able to meet in person, people
that--who weren't able to access, you know,
00:31:00
groups or events that may have been in person that they couldn't make it to were
suddenly now digital and online, and that definitely made it, you know, more
accessible. What's sort of unfortunate is, you know, now we're sort of reaching
a point where we're trying to "go back to normal," and we're losing some of
that, you know, digital accessibility, so now I think it needs a shift of, like,
you know, like, no, it's not one or the other. I think we need to have both.
And, you know, prioritizing having, you know, more spaces that are sober spaces,
more spaces that are for, you know, queer kids and queer teens, more spaces
for--that are just not necessarily, you know, like, you know, like, sex-centered
spaces or, you know, socially, like, overstimulating kind of spaces, like clubs
or bars. I think that that--like, prioritizing that and prioritizing, you know,
both digital and in-person spaces, I think, is super important.
THOMPSON:
00:32:00
Thank you for sharing that. I mean, kind of off-topic, but you mentioned that,
like, bars and stuff aren't the, like, only, like, queer, like, spaces in
Lexington. I would love to hear about other, like, spaces that LGBT people might
be gathering in the city, if you feel comfortable sharing.
PETERS-WHITE: Yeah, absolutely. So, I mean, like, in terms of, like, physical
spaces, the only one that I know of, you know, very specifically is the Pride
Center, and that's, you know, more of, like, a resource hub than anything else.
I'm also, you know, glad that, you know, UK offers the Office of LGBTQ
Resources. I think it's super important that, you know, it's right there in the
Student Center. They--you know, they have, you know, sort of, like, the
speakeasy wall. They, like, you know, respect people's privacy and need to, you
know, sometimes, you know, keep themselves, you know, in the closet and, you
know, like, just, you know, aren't able to be out yet. And
00:33:00
you know, there's, you know, small groups. You know, I actually attended an
event a little less than two months ago called Quietly Queer that a friend of
mine started a few years ago that, you know, allows, you know, queer people in
Lexington--I think it was inspired by a group in New York that does something
similar where, you know, they just offer, like, to, like, host a space where,
you know, queer people who, again, aren't interested in, you know, like, any
overstimulating or, you know, inaccessible environments to, you know, meet
together, network, meet other queer people. So they had an event, I think, at
Chocolate Holler, a chocolate and coffee bar and, you know, just allowed for
people to, like, you know, meet up and just meet other people. I--other than
that, I
00:34:00
don't know of any other ones specifically. You know, I know a lot of places that
are, you know, queer friendly or, you know, sort of, like, safe--designated,
like, safe spaces. But yeah. Yeah.
THOMPSON: Thank you for sharing that. So kind of--I would love to hear,
like--we're talking a lot about Lexington, so I was also wondering, like, how
was the transition from Pennsylvania to Kentucky for you? Like, in terms of
disability, but also just, like, in general? Like, anything you want to talk about.
PETERS-WHITE: Yeah, definitely. It's definitely been a very interesting
transition. You know, I grew up in Northeast Pennsylvania, and
it's--Pennsylvania's sort of a--like, a mixed bag in that, you know, it has a
lot of--you know, it's got some of the biggest, like, you know, major cities,
you know, in the country. You know, there's Pittsburgh. There's Philadelphia.
There's the capital, Harrisburg. But, you know, other than those major parts,
00:35:00
you know, like, most of, you know, Southwest, all the way up to Northeast PA,
all of Central PA, it's all, you know, Appalachian, and, you know, very rural,
and that's sort of the part that I grew up in. You know, I grew up in a very
rural area and, you know, it was sort of, like, rural suburban, and it was
definitely a bit of--(laughs)--not necessarily culture shock, but definitely a
shift, you know, moving down here and into a sort of--just sort of adjusting to
that, you know, growing from this sort of, like, northern coldness where you
don't really, you know, chat with people or, like, you know, make eye contact
with people, you know, as you're walking past them on the street, to--you know,
shifting to this, like, Southern hospitality has been, you know, very
interesting. (laughs) And that's just sort of, like, a general, you know,
experience with my transition to moving down here. And in terms of, you know,
accessibility and, you know, like, even just, like, representation, you know, I
was, you know--I had fully, you know, figured out that I was trans, like,
00:36:00
you know, when I was still in Pennsylvania, when I was still in high school, and
things were--just had not moved along much at all and, you know--accessibility
and, you know, conversations about the disabled community just--they were just
kind of, like, absent at that point. You know, it just wasn't something that I
even considered or knew about until I moved out here, which is kind of
interesting because everybody, you know, that I told, you know, like, "Oh, I'm
moving down to Kentucky," they're like, "Well, why would you move to Kentucky?"
I'm like, "Well--" And that's a whole other thing, you know, people dismissing
the South and--but, you know--and I think it's--you know, it's more so, I think,
just a, like, larger societal shift that's happening rather than just, like,
necessarily, like, a regional thing, because it is something that I think has
started to improve back in my hometown
00:37:00
area. But yeah. Yeah, so it's, you know--funny enough, I've actually, you know,
seen--I don't know. And, you know, not to mention, you know, Lexington's a bit
of an anomaly, I think, you know, compared to a lot of Kentucky just in terms
of, you know, like, general progressiveness and general, you know, like,
acceptance of, you know, intersectional identities and such, so yeah.
THOMPSON: Thank you for sharing that. That's a really interesting experience
that you've had. I guess with, like--do you have any, like, theory as to why
this cultural shift that you described, like, has occurred? Like, if you want me
to refresh what the shift was, I can right now (??).
PETERS-WHITE: Oh no, that's okay. Yeah. You know, I think--part of it, I think,
had a lot to do with COVID
00:38:00
and sort of, you know, having this necessary conversation about accessibility
and about, you know, the literal, like, wellbeing of, you know, everybody in the
world. And, you know, that sort of--I think sort of, like, catapulted a lot of
the conversations more. And, you know, I--I'm very aware that, you know, a lot
of these conversations have been happening for a long time, but they just
haven't, you know, had the space to be heard well enough, which is why, you
know, I hadn't really, you know, known about, you know, a lot of this stuff
until I moved down here and sort of, like, learned more about the disabled
community and, you know, learned stuff about myself and all of these things. And
I think so--you know, I think COVID had a really big part of it, and I think
also, you know, just this general shift in the last, like,
00:39:00
I'd say even, like, you know, like, maybe, like, five years or so, five or six
years. I had a conversation with a friend a couple months ago about sort of
the--like, some sort of shift happened at some point, you know, especially when
it came to sort of representation about, you know, any kind of
intersectionality, especially in, like, television or any kind of media where,
you know--and it could sort of like, you know, just be sort of, like--pointed
to, like, political correctness sort of, like, being a thing. And, you know, I
don't like to use that term just because it gets sort of mocked or looked down
at, but that's sort of the only term that it comes with. And I'm not sure
how--where I'm really going with this. But like, there was a real shift with,
you know, like,
00:40:00
people actually listening to people when saying, like, you know, like, "No,
like, you know, these kind of, you know, microaggressive kind of, you know,
comments that you might make or jokes that you might make, like, do have an
impact, and they build up to a certain point where we reach the point where, you
know, people are, you know, being harassed, being attacked, you know, being,
like, murdered because of, you know, parts of themselves." And I think there was
some sort of shift and, again, I can't really pinpoint what it was that sort of
moved that conversation a little bit more to the forefront, I think. It was a
very long-winded way of--(laughs)--of answering that, but.
THOMPSON: No, thank you for sharing that. So I guess--this is kind of going back
to something discussed a while ago, and you don't have to share this if you
don't feel comfortable, but you did reference the time that you spent inpatient,
and I was wondering if you felt comfortable talking about your experiences with that.
00:41:00
If you don't, that's totally okay. Just let me know.
PETERS-WHITE: Yeah, no, I appreciate the check-in. I'm very open to talking
about it. So yeah, so I was about--let's see, about two and a half months into
my culinary program. It was a very intensive program. It was an eighteen--no, it
was a year-long program followed by an internship or an externship that lasts
about four months, and what made it possible to complete the program in a year
was that you were in classes Monday through Friday, 8:00 a.m. to 4:30 p.m. So it
was kind of like a full--it was literally a full-time job. I was, you know,
privileged enough to not have to, you know, work on top of that. You know, I had
some savings. I had financial support from my family. But even with that, you
know, even not needing to
00:42:00
take up a job, I was, you know, physically and emotionally drained, and
Halloween of October 2016 came up, and I just sort of had this, like, breaking
point. I--it literally was just, like, I was about to go to bed and I realized
that I had forgotten another assignment and I just--I had a complete breakdown,
and the next day, I--you know, I skipped class. I called my mom and I was like,
"I'm not okay. I don't really know what to do." And then, you know, from there,
a couple days later, we decided to go to the emergency room. I got a psychiatric
evaluation and--I don't know if this is an across-the-board thing, but, you
know, the system that they used, you know, they ask you sort of, like, an
intake--kind of, like, assessment, just, like, questions about, you know, your
current wellbeing, and they sort of rank it on a scale of zero to thirty, zero
being, you know, you're sort of--you're mentally well, you don't need any kind
of, you know, specific treatment. Thirty is, like,
00:43:00
immediate hospitalization, and I was at a fifteen, like, right down the middle.
So the nurse that did my intake said, you know, "It's up to you if you want to
do this," and it was one of the hardest decisions I've had to make in my
twenty-four years so far, but I decided to go through with it, and I stayed for,
I believe, eleven or twelve days. So just under two weeks. I said a week before,
but it was actually just under two weeks that I was there. And, you know, it was
an odd experience, you know. Spaces like that, I think, you know--inpatient
programs are typically--seems like sort of, like, brushed under the rug and, you
know, not given the full sort of, like, resources that they always need for them
to function really
00:44:00
wholeheartedly. You know, most of the nurses and, you know, therapists and
people that I talked to were working there on a volunteer basis. I--but at the
same time, I know that, you know, having that, you know, space to, at the very
least, have my, like, basic needs met while I worked on myself was helpful to
me. Yeah. Yeah.
THOMPSON: Thank you for sharing that. So I want to shift into some, like,
broader questions, and you can feel free to take this in any way that you want.
What do you wish people knew about being disabled? Or--either in the sense of
your disability or just broadly?
PETERS-WHITE: I think, you know, I wish people would just sort of--you know,
similar to what I was
00:45:00
talking about earlier, just have a better understanding of, you know, the broad
spectrum of disabled community, and that, you know, it's--you know, I--you know,
there are, you know, like--I think the, like, sort of the shift in, you know,
like, there's no sort of, like, you know, like--sort of shifting from, like, you
know, referring from autism as, like, you know, mild autism versus, like, severe
autism, I think, you know, could even, you know, more broadly, you know, be
spoken about, you know, disabilities. There's ones that, you know, need more
accommodations and need more needs, and that is completely okay. But I
don't--but, you know, using that to sort of invalidate other people's
experiences who, you know, still have needs and, you know, accessibility
requirements, but, you know, might not be as many as, you know, the person next
to them. I think, you know, the biggest thing is, you know, broadening their
perspective on what it means to be disabled.
00:46:00
I watched a TikTok recently about how--I don't remember the exact language but,
you know, the disabled community is--one--is the community that is, you know,
continues to, you know, gain new people, like, every single day, you know,
all--like, constantly because it's something that, you know--any point, somebody
can become either temporarily or permanently disabled. And, you know, it's
something that, you know, we just don't have conversations about, you know,
things like that. And yeah, so I think, you know--I wish that people would just
have a, I guess, broader perspective on disability as a whole is the biggest
thing, I think.
THOMPSON: Thank you for sharing that. What advice would you give someone who
recently realized that they were disabled or, like, recently
00:47:00
was diagnosed with a disability? And you can -----------(??)---------- if you want.
PETERS-WHITE: Yeah, no, I appreciate that. Well, I think, you know, as much as,
you know, the Internet can be, like, both a, like, amazing and horrible
tool--(laughs)--in that, you know, like, we have access to so many different,
you know, pieces of information, just holding, you know, the, like, you know,
thought in mind that, you know, like, it's--even if, you know, it feels
isolating and, you know, feels, like, scary, you know, it is not, you
know--you're not the only one, you know. And it feels, like, sort of, like,
cliché and cheesy to be saying something like that. You know, like, "Oh, you're
not alone." But it is--it's very true because, you know, within my experiences,
you know, like, it--I've been able to--similar to when I
00:48:00
learned about, you know, my queerness and my gender identity, like, was
introduced to this beautiful community of, you know, very welcoming people and,
you know, who, you know, would ask about, like, you know, accommodation things
that, you know, I didn't even think of. Like, "Oh, well, you know, I don't
necessarily need this, but this is really cool, you know, like, and important
that, you know, we're, you know--this helps somebody out, and that is, like,
really incredible that we are continuing to, you know, put more, I guess, sort
of, like, checkpoints up to make sure that people feel that they can, you
know--like, that spaces and, you know, whatever it might be are accessible." So,
you know, like, just sort of, like, keeping in mind, you know, that, you know,
there's no, like--this isn't, like, a single battle and, you know, I--and I
don't need to use the word battle. It's a bad way of phrasing it. But, you know,
00:49:00
like, you're not, you know, facing, you know, any, you know, short or long-term,
you know, things that you, you know, have to struggle with on your own. You
know, that there's a, you know, broad community of people to support, you know,
whatever your needs are, so.
THOMPSON: Thank you for sharing that. I think that's really important and
valuable information to share. Is there anything else that you would like to add
to the discussion that we haven't already talked about or that hasn't been
discussed in enough detail?
PETERS-WHITE: I don't think so. I mean, I feel like I, you know, said as much as
I feel like I, with my own experiences can share, so.
THOMPSON: All right. Well, are you okay, then, if we end this interview now?
PETERS-WHITE: Yep, that works for me.
THOMPSON: All right, thank you for talking with me today. Why is my--sorry, my
Zoom's acting weird.
PETERS-WHITE: Oh, you are all--
THOMPSON:
00:50:00
(laughs) Thank you for talking me today--with me today and sharing this. I'm
going to go ahead and end the recording now.
PETERS-WHITE: Okay.
[End of interview.]
00:51:00